oliviatobin published Reigate family reveal agony at being asked to prepare for their...

The parents of a three-year-old Reigate boy with an extremely rare genetic brain disorder have been told to prepare a plan for their young son's possible death.Reuben Condie, three, was diagnosed with Joubert Syndrome a few weeks after he was born. The NHS has no official data on how many people are affected by it but, according to his mother, Sophie Condie, 32, and father, Mike Condie, 28, it affects only around 1,500 people worldwide.READ MORE: A Tadworth mum is fighting to get the NHS to...

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